[01 · SHP-MED-02-016]

糖尿病长期管理数据。

一名糖尿病患者跨多年的管理病程。含糖代谢观测、降糖药医嘱与暴露、并发症筛查、随访任务与就诊、结局及覆盖缺口。观测类型与检测语境逐条分列。适用于慢病管理产品开发、专科管理质量分析与降糖治疗研究。

专病与全病程 · 评估与研究使用许可 · 更新日期 2026-08-05

17
实体: 153
字段: 3
实体关系: 02
所属体系

[02 · 产品说明]

读懂数据结构与交付边界

以下内容来自产品说明书，包含数据拓扑、字段字典、脱敏样例、使用场景及定制方式。

[01]

数据产品概览

项	数量	内容
实体	17	糖尿病管理病程 · 观察期 · 就诊 · 糖尿病诊断断言 · 糖代谢观测 · 降糖药医嘱 · 通用名药物 · 给药与暴露 · 生活方式照护计划 · 并发症筛查与评估 · 护理基线 · 随访任务 · 随访就诊 · 糖尿病结局 · 覆盖缺口 · 数据质量项 · 来源沿袭
字段	153	交付范围内的字段总数
实体关系	3	糖尿病管理病程 1—n 就诊／糖代谢观测／降糖药医嘱／并发症筛查／随访；糖化血红蛋白与即时血糖分列为两类观测 · 降糖药医嘱按来源医嘱层保存 · 护理基线组件在有可连接键时并入纵向病程；否则单独成表并说明原因

交付与供应方式

数据集交付：病程与观测 CSV／JSONL／Parquet ＋用药、筛查与随访表＋ Meta
API 调用
Token 计量
数巨有谱可信数据空间连接器合约使用

权利与来源

数据取得方式：数据资源持有方书面授权
数据来源机构：医疗机构（含等级医院、专科医院及康复机构）
数据加工机构：数巨有谱或数据资源持有方
数据经营机构：数巨有谱（经营权权利人）

[02 · DATA CONTENT]

数据内容与字段结构

在同一位置切换字段字典、实体血缘与脱敏样例，避免重复铺陈造成页面过长。

对象	英文键	中文名
并发症筛查与评估	screenassessmentid
并发症筛查与评估	parentobjectid	父对象标识
并发症筛查与评估	record_status	记录状态
并发症筛查与评估	sourceobjectid	来源对象标识
并发症筛查与评估	sourcerowid	来源行标识
并发症筛查与评估	eventtimeraw	事件时间
并发症筛查与评估	available_time	可用时间
并发症筛查与评估	missing_reason	缺失原因
并发症筛查与评估	data_nature	数据性质
覆盖缺口	coveragegapid	覆盖缺口标识
覆盖缺口	parentobjectid	父对象标识
覆盖缺口	record_status	记录状态
覆盖缺口	sourceobjectid	来源对象标识
覆盖缺口	sourcerowid	来源行标识
覆盖缺口	eventtimeraw	事件时间
覆盖缺口	available_time	可用时间
覆盖缺口	missing_reason	缺失原因
覆盖缺口	data_nature	数据性质
糖尿病诊断断言	diagnosisassertionid	诊断断言标识
糖尿病诊断断言	parentobjectid	父对象标识
糖尿病诊断断言	record_status	记录状态
糖尿病诊断断言	sourceobjectid	来源对象标识
糖尿病诊断断言	sourcerowid	来源行标识
糖尿病诊断断言	eventtimeraw	事件时间
糖尿病诊断断言	available_time	可用时间
糖尿病诊断断言	missing_reason	缺失原因
糖尿病诊断断言	data_nature	数据性质
糖尿病管理病程	diabetesmanagementcourse_id	糖尿病管理病程标识
糖尿病管理病程	parentobjectid	父对象标识
糖尿病管理病程	record_status	记录状态
糖尿病管理病程	sourceobjectid	来源对象标识
糖尿病管理病程	sourcerowid	来源行标识
糖尿病管理病程	eventtimeraw	事件时间
糖尿病管理病程	available_time	可用时间
糖尿病管理病程	missing_reason	缺失原因
糖尿病管理病程	data_nature	数据性质
降糖药医嘱	diabetesmedicationorder_id	降糖药医嘱标识
降糖药医嘱	parentobjectid	父对象标识
降糖药医嘱	record_status	记录状态
降糖药医嘱	sourceobjectid	来源对象标识
降糖药医嘱	sourcerowid	来源行标识
降糖药医嘱	eventtimeraw	事件时间
降糖药医嘱	available_time	可用时间
降糖药医嘱	missing_reason	缺失原因
降糖药医嘱	data_nature	数据性质
糖尿病护理基线	nursingbaselineid
糖尿病护理基线	parentobjectid	父对象标识
糖尿病护理基线	record_status	记录状态
糖尿病护理基线	sourceobjectid	来源对象标识
糖尿病护理基线	sourcerowid	来源行标识
糖尿病护理基线	eventtimeraw	事件时间
糖尿病护理基线	available_time	可用时间
糖尿病护理基线	missing_reason	缺失原因
糖尿病护理基线	data_nature	数据性质
糖尿病结局	diabetesoutcomeid	糖尿病结局标识
糖尿病结局	parentobjectid	父对象标识
糖尿病结局	record_status	记录状态
糖尿病结局	sourceobjectid	来源对象标识
糖尿病结局	sourcerowid	来源行标识
糖尿病结局	eventtimeraw	事件时间
糖尿病结局	available_time	可用时间
糖尿病结局	missing_reason	缺失原因
糖尿病结局	data_nature	数据性质
就诊	encounter_id	就诊号
就诊	parentobjectid	父对象标识
就诊	record_status	记录状态
就诊	sourceobjectid	来源对象标识
就诊	sourcerowid	来源行标识
就诊	eventtimeraw	事件时间
就诊	available_time	可用时间
就诊	missing_reason	缺失原因
就诊	data_nature	数据性质
随访就诊	followupencounterid	随访就诊标识
随访就诊	parentobjectid	父对象标识
随访就诊	record_status	记录状态
随访就诊	sourceobjectid	来源对象标识
随访就诊	sourcerowid	来源行标识
随访就诊	eventtimeraw	事件时间
随访就诊	available_time	可用时间
随访就诊	missing_reason	缺失原因
随访就诊	data_nature	数据性质
随访任务	followuptaskid	随访任务标识
随访任务	parentobjectid	父对象标识
随访任务	record_status	记录状态
随访任务	sourceobjectid	来源对象标识
随访任务	sourcerowid	来源行标识
随访任务	eventtimeraw	事件时间
随访任务	available_time	可用时间
随访任务	missing_reason	缺失原因
随访任务	data_nature	数据性质
通用名药品	genericdrugid	通用名药品标识
通用名药品	parentobjectid	父对象标识
通用名药品	record_status	记录状态
通用名药品	sourceobjectid	来源对象标识
通用名药品	sourcerowid	来源行标识
通用名药品	eventtimeraw	事件时间
通用名药品	available_time	可用时间
通用名药品	missing_reason	缺失原因
通用名药品	data_nature	数据性质
糖代谢观测	glycemicobservationid	糖代谢观测标识
糖代谢观测	parentobjectid	父对象标识
糖代谢观测	record_status	记录状态
糖代谢观测	sourceobjectid	来源对象标识
糖代谢观测	sourcerowid	来源行标识
糖代谢观测	eventtimeraw	事件时间
糖代谢观测	available_time	可用时间
糖代谢观测	missing_reason	缺失原因
糖代谢观测	data_nature	数据性质
生活方式照护计划	careplanid	护理计划标识
生活方式照护计划	parentobjectid	父对象标识
生活方式照护计划	record_status	记录状态
生活方式照护计划	sourceobjectid	来源对象标识
生活方式照护计划	sourcerowid	来源行标识
生活方式照护计划	eventtimeraw	事件时间
生活方式照护计划	available_time	可用时间
生活方式照护计划	missing_reason	缺失原因
生活方式照护计划	data_nature	数据性质
给药与药物暴露	medicationexposureid	药物暴露标识
给药与药物暴露	parentobjectid	父对象标识
给药与药物暴露	record_status	记录状态
给药与药物暴露	sourceobjectid	来源对象标识
给药与药物暴露	sourcerowid	来源行标识
给药与药物暴露	eventtimeraw	事件时间
给药与药物暴露	available_time	可用时间
给药与药物暴露	missing_reason	缺失原因
给药与药物暴露	data_nature	数据性质
观察期	observationperiodid	观察期标识
观察期	parentobjectid	父对象标识
观察期	record_status	记录状态
观察期	sourceobjectid	来源对象标识
观察期	sourcerowid	来源行标识
观察期	eventtimeraw	事件时间
观察期	available_time	可用时间
观察期	missing_reason	缺失原因
观察期	data_nature	数据性质
数据质量项	qualityissueid	数据质量项标识
数据质量项	parentobjectid	父对象标识
数据质量项	record_status	记录状态
数据质量项	sourceobjectid	来源对象标识
数据质量项	sourcerowid	来源行标识
数据质量项	eventtimeraw	事件时间
数据质量项	available_time	可用时间
数据质量项	missing_reason	缺失原因
数据质量项	data_nature	数据性质
来源沿袭	lineage_id	沿袭标识
来源沿袭	parentobjectid	父对象标识
来源沿袭	record_status	记录状态
来源沿袭	sourceobjectid	来源对象标识
来源沿袭	sourcerowid	来源行标识
来源沿袭	eventtimeraw	事件时间
来源沿袭	available_time	可用时间
来源沿袭	missing_reason	缺失原因
来源沿袭	data_nature	数据性质

数据血缘拓扑

实体与连接关系分层呈现：上方先识别全部数据对象，下方逐条阅读关系基数，避免连线交叠、标签遮挡或内容被裁切。

17 个实体14 条连接响应式完整展示

实体概览

核心实体以品牌蓝标识

01核心实体

糖尿病管理病程

类型 · 定义版本

02关联实体

观察期

起止 · 确定方式

03关联实体

就诊

门诊 · 住院

04关联实体

糖尿病诊断断言

记载位置 · 确认状态

05关联实体

糖代谢观测

血糖 · 糖化血红蛋白

06关联实体

降糖药医嘱

药名 · 剂量 · 起止

07关联实体

通用名药物

分子级归一

08关联实体

给药与暴露

证据状态

09关联实体

并发症筛查与评估

眼底 · 肾 · 神经 · 足

10关联实体

生活方式照护计划

饮食 · 运动 · 监测

11关联实体

护理基线

入院评估记录

12关联实体

随访任务

计划安排

13关联实体

随访就诊

实际复诊

14关联实体

糖尿病结局

结局事实

15关联实体

覆盖缺口

空白区间

16辅助实体

数据质量项

quality_issue

17辅助实体

来源沿袭

source_lineage

连接关系

每条关系独占一行，基数置于两实体之间

实体 A01

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

观察期

起止 · 确定方式

实体 A02

观察期

起止 · 确定方式

1—n

实体 B

就诊

门诊 · 住院

实体 A03

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

糖尿病诊断断言

记载位置 · 确认状态

实体 A04

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

糖代谢观测

血糖 · 糖化血红蛋白

实体 A05

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

降糖药医嘱

药名 · 剂量 · 起止

实体 A06

降糖药医嘱

药名 · 剂量 · 起止

n—1

实体 B

通用名药物

分子级归一

实体 A07

降糖药医嘱

药名 · 剂量 · 起止

1—n

实体 B

给药与暴露

证据状态

实体 A08

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

并发症筛查与评估

眼底 · 肾 · 神经 · 足

实体 A09

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

生活方式照护计划

饮食 · 运动 · 监测

实体 A10

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

随访任务

计划安排

实体 A11

随访任务

计划安排

1—n 任务与实际复诊的对应，无正式对应时不连边

实体 B

随访就诊

实际复诊

实体 A12

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

糖尿病结局

结局事实

实体 A13

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

覆盖缺口

空白区间

实体 A14

糖尿病管理病程

类型 · 定义版本

1—n

实体 B

护理基线

入院评估记录

核心实体关联实体1—1 / 1—n / n—1 表示关系基数

查看关系语义清单

起	基数	至	关系语义
糖尿病管理病程	1—n	观察期	病程下的观察期
观察期	1—n	就诊	观察期内的各次就诊
糖尿病管理病程	1—n	糖尿病诊断断言	各处糖尿病诊断记载
糖尿病管理病程	1—n	糖代谢观测	病程内的糖代谢观测
糖尿病管理病程	1—n	降糖药医嘱	病程内的降糖药医嘱
降糖药医嘱	n—1	通用名药物	医嘱名称归一到通用名
降糖药医嘱	1—n	给药与暴露	有给药证据时生成实际暴露
糖尿病管理病程	1—n	并发症筛查与评估	并发症筛查与评估记录
糖尿病管理病程	1—n	生活方式照护计划	生活方式照护计划
糖尿病管理病程	1—n	随访任务	随访任务安排
随访任务	1—n	随访就诊	任务与实际复诊的对应，无正式对应时不连边
糖尿病管理病程	1—n	糖尿病结局	病程结局记录
糖尿病管理病程	1—n	覆盖缺口	观察期内的覆盖缺口
糖尿病管理病程	1—n	护理基线	可连接时并入的护理基线记录

随访任务与实际复诊之间的对应，只在来源有正式对应关系时才成立。血糖与糖化血红蛋白同属糖代谢观测，但检测语境不同，序列各自独立。

样例字段语义

分组	字段	英文键	语义
糖尿病管理病程	病程与糖尿病类型	diabetesmanagementcourse_id	一名患者在某一糖尿病类型与定义版本下的管理病程；类型未明确时保持未知
观察期	观察期	observationperiodid	本次数据可见的诊疗时间范围；由首末事件推得的范围只说明来源中可见
糖尿病诊断断言	诊断断言	diagnosisassertionid	糖尿病在来源中的每一处记载及其位置，如既往史、门诊诊断栏、住院确定诊断、出院诊断；既往史反复出现不增加独立病例数
糖代谢观测	糖代谢观测	glycemicobservationid	血糖与糖化血红蛋白等观测记录；须保留标本、采集时间、检测语境与单位，空腹、随机、餐后、床旁与连续监测互不替代
降糖药医嘱	降糖药医嘱	diabetesmedicationorder_id	降糖药物的来源医嘱记录，含药名、剂量、频次、途径与起止
通用名药物	通用名药物	genericdrugid	医嘱名称对应的通用名，同一分子的不同商品名归拢到同一通用名下
给药与暴露	给药与暴露	medicationexposureid	有给药或调剂证据的实际用药记录
并发症筛查与评估	筛查与评估	screenassessmentid	眼底、肾病、周围神经病变与足部等并发症筛查的记录与结论
生活方式照护计划	照护计划	careplanid	饮食、运动与自我监测的计划内容；计划与实际执行分开保存
护理基线	护理基线	nursingbaselineid	入院护理评估中与糖尿病相关的基线记录，如微血管病变与下肢足部症状
随访任务	随访任务	followuptaskid	计划中的随访安排；仅在来源有正式任务记录时生成
随访就诊	随访就诊	followupencounterid	实际发生的复诊记录；随访完成状态按任务—完成对应关系判定
糖尿病结局	结局记录	diabetesoutcomeid	与糖尿病相关的结局事实
覆盖缺口	覆盖缺口	coveragegapid	观察期内无记录的区间；空白既可能是患者未就诊，也可能是在本次数据范围外就诊
全表	首次可用时间与缺失原因	availabletime / missingreason	该记录首次可被读取的时点及缺失原因，用于判断能否进入某一时点的决策类任务

样例记录

一名 2 型糖尿病患者跨多年的门诊与住院记录。血糖与糖化血红蛋白两类糖代谢观测各自成序列。二甲双胍与阿卡波糖等降糖药医嘱分布于多次就诊。门诊病历既往史、门诊诊断栏与住院确定诊断三处糖尿病记载分别保留。

{
  "样例性质": "真实记录·已脱敏",
  "diabetes_management_course": {
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    },
    {
      "available_time": null,
      "collection_time": "2026-02-03 10:10:00",
      "encounter_id": "ENCOUNTER-0000013",
      "event_time_raw": "2026-02-03 10:10:00",
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    },
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      "event_time_raw": "2026-02-03 10:10:00",
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    },
    {
      "available_time": null,
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      "encounter_id": "ENCOUNTER-0000014",
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      "result_unit_raw": "mmol/L",
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      "source_object_id": "SOURCE_OBJECT-0000018",
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      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
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      "encounter_id": "ENCOUNTER-0000014",
      "event_time_raw": "2026-07-23 11:40:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000019",
      "item_name_raw": "糖化血红蛋白",
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      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
      "collection_time": "2021-07-04 12:25:00",
      "encounter_id": "ENCOUNTER-0000001",
      "event_time_raw": "2021-07-04 12:25:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000020",
      "item_name_raw": "葡萄糖",
      "missing_reason": null,
      "observation_type": "glucose",
      "parent_object_id": "PARENT_OBJECT-0000002",
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      "source_object_id": "SOURCE_OBJECT-0000018",
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    },
    {
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      "encounter_id": "ENCOUNTER-0000001",
      "event_time_raw": "2021-07-04 12:25:00",
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      "item_name_raw": "糖化血红蛋白",
      "missing_reason": null,
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      "result_unit_raw": "%",
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      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
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      "collection_time": "2021-07-06 18:20:00",
      "encounter_id": "ENCOUNTER-0000001",
      "event_time_raw": "2021-07-06 18:20:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000022",
      "item_name_raw": "葡萄糖",
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      "observation_type": "glucose",
      "parent_object_id": "PARENT_OBJECT-0000002",
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      "result_unit_raw": "mmol/L",
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      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
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      "encounter_id": "ENCOUNTER-0000002",
      "event_time_raw": "2024-01-07 11:45:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000023",
      "item_name_raw": "葡萄糖",
      "missing_reason": null,
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      "parent_object_id": "PARENT_OBJECT-0000002",
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    },
    {
      "available_time": null,
      "collection_time": "2024-01-07 11:45:00",
      "encounter_id": "ENCOUNTER-0000002",
      "event_time_raw": "2024-01-07 11:45:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000024",
      "item_name_raw": "糖化血红蛋白",
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      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
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      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
      "collection_time": "2024-01-09 17:40:00",
      "encounter_id": "ENCOUNTER-0000002",
      "event_time_raw": "2024-01-09 17:40:00",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000025",
      "item_name_raw": "葡萄糖",
      "missing_reason": null,
      "observation_type": "glucose",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "reference_range_raw": "3.9-6.1",
      "result_unit_raw": "mmol/L",
      "result_value_raw": "7.8",
      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
      "collection_time": "2026-07-25 13:40:27",
      "encounter_id": "ENCOUNTER-0000003",
      "event_time_raw": "2026-07-25 13:40:27",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000026",
      "item_name_raw": "葡萄糖",
      "missing_reason": null,
      "observation_type": "glucose",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "reference_range_raw": "3.9-6.1",
      "result_unit_raw": "mmol/L",
      "result_value_raw": "6.9",
      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
      "collection_time": "2026-07-25 13:40:27",
      "encounter_id": "ENCOUNTER-0000003",
      "event_time_raw": "2026-07-25 13:40:27",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000027",
      "item_name_raw": "糖化血红蛋白",
      "missing_reason": null,
      "observation_type": "hba1c",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "reference_range_raw": "4.27-6.07",
      "result_unit_raw": "%",
      "result_value_raw": "6.9",
      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    },
    {
      "available_time": null,
      "collection_time": "2026-07-27 19:35:27",
      "encounter_id": "ENCOUNTER-0000003",
      "event_time_raw": "2026-07-27 19:35:27",
      "glycemic_observation_id": "GLYCEMIC_OBSERVATION-0000028",
      "item_name_raw": "葡萄糖",
      "missing_reason": null,
      "observation_type": "glucose",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "reference_range_raw": "3.9-6.1",
      "result_unit_raw": "mmol/L",
      "result_value_raw": "6.9",
      "source_object_id": "SOURCE_OBJECT-0000018",
      "specimen_type": "静脉血",
      "testing_context": "source_context_retained"
    }
  ],
  "diabetes_medication_order": [
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000001",
      "dose_unit": "g",
      "dose_value": "1",
      "encounter_id": "ENCOUNTER-0000001",
      "event_time_raw": "2022-01-31 10:25:00",
      "exposure_status": "not_verified",
      "frequency": "b.i.d.",
      "generic_name": "二甲双胍",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "二甲双胍缓释片(0.5g*30片)",
      "missing_reason": null,
      "order_end_time": "2022-02-28 10:25:00",
      "order_start_time": "2022-01-31 10:25:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000002",
      "dose_unit": "mg",
      "dose_value": "50",
      "encounter_id": "ENCOUNTER-0000002",
      "event_time_raw": "2022-08-03 09:55:00",
      "exposure_status": "not_verified",
      "frequency": "t.i.d.",
      "generic_name": "阿卡波糖",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "阿卡波糖片(50mg*30片)",
      "missing_reason": null,
      "order_end_time": "2022-08-31 09:55:00",
      "order_start_time": "2022-08-03 09:55:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000003",
      "dose_unit": "g",
      "dose_value": "1",
      "encounter_id": "ENCOUNTER-0000003",
      "event_time_raw": "2021-07-04 10:45:00",
      "exposure_status": "not_verified",
      "frequency": "b.i.d.",
      "generic_name": "二甲双胍",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "二甲双胍缓释片(0.5g*30片)",
      "missing_reason": null,
      "order_end_time": "2021-07-09 09:40:00",
      "order_start_time": "2021-07-04 10:45:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000004",
      "dose_unit": "mg",
      "dose_value": "50",
      "encounter_id": "ENCOUNTER-0000004",
      "event_time_raw": "2021-07-04 10:45:00",
      "exposure_status": "not_verified",
      "frequency": "t.i.d.",
      "generic_name": "阿卡波糖",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "阿卡波糖片(50mg*30片)",
      "missing_reason": null,
      "order_end_time": "2021-07-09 09:40:00",
      "order_start_time": "2021-07-04 10:45:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000005",
      "dose_unit": "g",
      "dose_value": "1",
      "encounter_id": "ENCOUNTER-0000005",
      "event_time_raw": "2024-01-07 10:05:00",
      "exposure_status": "not_verified",
      "frequency": "b.i.d.",
      "generic_name": "二甲双胍",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "二甲双胍缓释片(0.5g*30片)",
      "missing_reason": null,
      "order_end_time": "2024-01-13 09:30:00",
      "order_start_time": "2024-01-07 10:05:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000006",
      "dose_unit": "mg",
      "dose_value": "50",
      "encounter_id": "ENCOUNTER-0000001",
      "event_time_raw": "2024-01-07 10:05:00",
      "exposure_status": "not_verified",
      "frequency": "t.i.d.",
      "generic_name": "阿卡波糖",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "阿卡波糖片(50mg*30片)",
      "missing_reason": null,
      "order_end_time": "2024-01-13 09:30:00",
      "order_start_time": "2024-01-07 10:05:00",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000007",
      "dose_unit": "g",
      "dose_value": "1",
      "encounter_id": "ENCOUNTER-0000002",
      "event_time_raw": "2026-07-25 12:00:27",
      "exposure_status": "not_verified",
      "frequency": "b.i.d.",
      "generic_name": "二甲双胍",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "二甲双胍缓释片(0.5g*30片)",
      "missing_reason": null,
      "order_end_time": "2026-07-29 09:02:00",
      "order_start_time": "2026-07-25 12:00:27",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    },
    {
      "available_time": null,
      "diabetes_medication_order_id": "DIABETES_MEDICATION_ORDER-0000008",
      "dose_unit": "mg",
      "dose_value": "50",
      "encounter_id": "ENCOUNTER-0000003",
      "event_time_raw": "2026-07-25 12:00:27",
      "exposure_status": "not_verified",
      "frequency": "t.i.d.",
      "generic_name": "阿卡波糖",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "medication_name_raw": "阿卡波糖片(50mg*30片)",
      "missing_reason": null,
      "order_end_time": "2026-07-29 09:02:00",
      "order_start_time": "2026-07-25 12:00:27",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "route": "口服",
      "source_object_id": "SOURCE_OBJECT-0000019"
    }
  ],
  "generic_drug": [
    {
      "available_time": null,
      "event_time_raw": null,
      "generic_drug_id": "GENERIC_DRUG-0000001",
      "generic_name": "二甲双胍",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "missing_reason": "not_covered_or_not_applicable",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "source_object_id": "SOURCE_OBJECT-0000001"
    },
    {
      "available_time": null,
      "event_time_raw": null,
      "generic_drug_id": "GENERIC_DRUG-0000002",
      "generic_name": "阿卡波糖",
      "mapping_rule_version": "P16-MED-v1",
      "mapping_status": "source_structured_generic_name",
      "missing_reason": "not_covered_or_not_applicable",
      "parent_object_id": "PARENT_OBJECT-0000002",
      "record_status": "source_record",
      "source_object_id": "SOURCE_OBJECT-0000001"
    }
  ],
  "diabetes_nursing_baseline": {
    "assessment_time": "2022-05-29T11:39:00",
    "available_time": null,
    "bmi": "22.83",
    "event_time_raw": null,
    "fall_risk_score": "3",
    "link_status": "unlinked_no_crosswalk",
    "missing_reason": null,
    "nursing_baseline_id": "NURSING_BASELINE-0000001",
    "pain_score": "0",
    "parent_object_id": "PARENT_OBJECT-0000003",
    "record_status": "source_record",
    "self_care_level": "轻度依赖(总分61-99分)",
    "self_care_score": "70",
    "source_object_id": "SOURCE_OBJECT-0000020",
    "symptom_or_finding_raw": "病员女，因“经尿道膀胱肿物等离子电切术术后2-月，带入保留尿管引流淡黄色小便，左肾造瘘管引流淡黄色小便”，今日门诊以“膀胱肿瘤”收住入院，病员来时神志清楚，情绪稳定，面部轻度肿胀，贫血貌，步入病房，左肾造瘘管引流小便淡黄色，予更换造瘘袋，行入院宣教及新冠肺炎疫情健康宣教，理解，配合。既往史：右肾全切手术术后，高血压，糖尿病，左肾造瘘手术术后，中度贫血，鼻根部高分化鳞癌，外阴癌手术术后，肺结核，慢性乙型肝炎。"
  },
  "coverage_gap": {
    "available_time": null,
    "coverage_gap_id": "COVERAGE_GAP-0000001",
    "event_time_raw": null,
    "missing_reason": "not_covered_or_not_applicable",
    "parent_object_id": "PARENT_OBJECT-0000004",
    "record_status": "source_record",
    "source_object_id": "SOURCE_OBJECT-0000001"
  },
  "quality_issue": {
    "available_time": null,
    "event_time_raw": null,
    "missing_reason": null,
    "parent_object_id": "PARENT_OBJECT-0000004",
    "quality_code": "UNLINKED_NURSING_COMPONENT",
    "quality_issue_id": "QUALITY_ISSUE-0000001",
    "quality_message": "nursing baseline remains unlinked without a verified crosswalk",
    "record_status": "source_record",
    "source_object_id": "SOURCE_OBJECT-0000001"
  }
}

[03]

使用场景

血糖管理模型与随访产品的开发

医疗科技企业 · 慢病管理与数字疗法产品团队

两类指标分序列：糖化血红蛋白反映数月平均水平，即时血糖反映当下状态。两者分序列保存，各自成一条轨迹
检测语境入模：空腹、随机、餐后与床旁血糖的正常范围不同。语境字段随观测交付，模型判断高低时先看语境
离散血糖记录：本产品交付的是门诊与住院场景下的离散血糖记录
用药暴露分层：医嘱与实际给药分列保存，依从性分析可直接取实际给药记录
随访闭环判定：随访任务与实际复诊只有正式对应关系才连边，可据此判定闭环是否完成

获得：指标语境与用药证据清楚的慢病产品开发底表

糖尿病管理质量与并发症筛查分析

三甲医院 · 内分泌科

控制轨迹：糖化血红蛋白的多次观测构成长期控制轨迹，与治疗方案变更时点对照
方案演变：降糖药医嘱按通用名归一后，可还原从单药到联合的真实方案演变
筛查完成率：眼底、肾病、神经病变与足部筛查各自登记，直接得出规范筛查的实际完成情况
症状与判定分列：视物模糊、足麻等症状记录与并发症判定分开保存。筛查率与患病率可分别统计
诊断记载分布：同一诊断在既往史、门诊诊断栏与住院确定诊断中的记载分别保留，统计口径可自选

获得：控制轨迹与筛查完成情况可复算的专科管理底表

用药模式与控制达标的观察研究

药械企业 · 降糖治疗真实世界研究

分子级统计：医嘱名称归一到通用名，可按分子统计用药份额
方案切换分析：以医嘱起止时间还原方案切换时点，考察切换前后的指标变化
达标评估：以糖化血红蛋白观测评估控制达标情况，指标定义与观测语境写在明处
观察连续性：覆盖缺口显式登记，院外就医的时段在数据里有标记

获得：用药模式与达标评估口径清楚的研究数据

糖尿病人群随访覆盖核查

区域医疗平台与医联体 · 慢病随访

覆盖体检：以覆盖缺口的分布评估辖区糖尿病人群的实际随访触达情况
类型未知处理：糖尿病类型未明确的人群单独统计
筛查任务分派：以并发症筛查记录识别长期未筛查人群，形成随访任务清单
基线口径统一：护理基线与门诊记录采用同一套字段口径，跨机构汇总时不必二次映射

获得：随访触达与筛查缺口可量化的区域慢病底表

[04]

定制与定向

是否支持定制：是
糖尿病类型（单选）：2 型糖尿病 / 全部糖尿病类型（含类型未明确）
其他定制项（多选）：医院等级 / 指定医院 / 最短观察时长 / 指定观测项目 / 降糖药类别 / 是否含并发症筛查 / 观察时间范围
最低定制数量：3,000 条管理病程
观测语境：血糖检测语境、标本与单位随观测交付；来源未写明语境时如实标注未知
其他可定制项：与项目商务确定

[05]

去标识化与交付

直接标识符移除：姓名、证件号码、联系方式、住址
间接标识符不可逆映射：患者标识、就诊号、报告单号
时间平移：整体平移并保持时序与时间间隔
机构与医师信息去除或泛化
自由文本二次核查：叙述内容中的标识信息
可按项目追加 K-匿名等泛化处理，匿名化的判定与出具方式随项目约定
病程内全部就诊、观测与医嘱时点同步平移，观测间隔与用药时长保持不变

加密通道交付：支持

[06]

关联数据集

SHP-MED-03-018 结构化检验结果数据——糖代谢观测背后的原子检验结果
SHP-MED-03-019 检验时序与变化数据——血糖与糖化血红蛋白的变化序列与指标
SHP-MED-01-007 医嘱、用药与治疗执行数据——降糖药医嘱与执行的证据分层

[07]

常见问题

糖尿病数据集包含哪些内容？

糖尿病长期管理数据（SHP-MED-02-016）是一名患者跨多年的管理病程，含糖代谢观测、降糖药医嘱与给药暴露、并发症筛查与评估、护理基线、随访任务与就诊、结局与覆盖缺口。字段有糖尿病类型与确认状态、观测项目与取值、参考范围、标本类型、检测语境。

慢病管理模型用什么数据训练？

糖尿病长期管理数据（SHP-MED-02-016）把糖化血红蛋白与即时血糖分序列保存，各成一条轨迹；空腹、随机、餐后与床旁血糖的检测语境随观测交付，模型判断高低前先看语境。内分泌科可分析控制轨迹、方案演变与并发症筛查完成情况。

糖尿病管理数据怎么交付？

糖尿病长期管理数据（SHP-MED-02-016）的产品页给出真实脱敏样例与逐字段语义说明。交付形态有数据集（病程与观测表、用药筛查与随访表）、API 调用、Token 计量与可信数据空间连接器合约使用，数据量按项目商定。

能只要 2 型糖尿病吗，起订量多少？

糖尿病长期管理数据（SHP-MED-02-016）可选 2 型糖尿病或全部糖尿病类型（含类型未明确），并可按最短观察时长、指定观测项目、降糖药类别、是否含并发症筛查定制，起订量为 3,000 条管理病程。起步可先申请开源子集或测试数据。

降糖治疗研究还要配哪些数据？

糖尿病长期管理数据（SHP-MED-02-016）与检验时序与变化数据（SHP-MED-03-019）组合，可得到血糖与糖化血红蛋白的变化序列与派生指标；与医嘱、用药与治疗执行数据（SHP-MED-01-007）组合，可完成降糖药的证据分层。

[08]

获取方式

有明确科研／临床项目：提供研究方向与所需字段范围，可先申请开源子集用于可行性验证。
有明确数据智能场景：提供模型或应用场景，可先申请测试数据与接入方式完成联调。
许可：评估与研究使用许可。

[03 · 关联产品]

继续查看可连接的数据产品

按产品资料中登记的患者、就诊、事件或任务标识关系继续查看。

SHP-MED-03-018体系 03

结构化检验结果数据

一次检验从申请到原子结果的四层完整链条：申请、标本、报告版本与原子检验结果。每条结果同时保留来源原值与标准化取值、参考范围与异常判定依据。适用于检验解读模型训练、项目字典归一与多中心实验室数据管理。

4 个实体46 个字段

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SHP-MED-03-019体系 03

检验时序与变化数据

可比较的检验观察序列及其变化指标。构成序列的条件是：同一患者或同一次就诊、同一项目、同一标本语境。同一可比单位下至少要有两个时点。附相邻变化、两点指标、回归斜率与锚点窗口指标。适用于恶化预警建模、指标动态分析与实验室安全性观察。

11 个实体186 个字段

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SHP-MED-01-007体系 01

医嘱、用药与治疗执行数据

医嘱项目、实际执行事件与药物暴露证据分三层保存。医嘱记录的是开立意图，执行事件记录的是实际做过的事。两者之间的关联按证据强度分候选关联与已核关联。适用于处方审核训练、医嘱点评与药物暴露定义。

11 个实体62 个字段

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